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thegooftroopfla

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Everything posted by thegooftroopfla

  1. We were there a month ago. It was a disaster. We were staying off property and used uber to get in. It was a pain getting in, then a pain getting out of there, because there was no good place to get picked up. So after our uber driver couldn't find us we took a cab. The crowd was insane. With all the privacy walls you could barely walk, much less with a kid in a wheelchair.
  2. Another question. How does the boarding work.mwe went to do online check in last week, but it was saying not to show up till after 3. We waited because make a wish had our packet. When we got our packet it told us make a wish reccomendation was to arrive around noon because buses get there at 1230. Our initial plan was to get there as early as possible, it's a two hour drive approximately. I had seen on a famous TCD report that this might be a great idea so we can get to the aqua duck quicker, we are wearing our bathing suits up. Plus we want to have lunch on the boat. So we decided to not d
  3. We are really pumped. They told us he was awarded make a wish in late February early March. However, we were in Baltimore till July, so he couldn't have his wish granted till we returned. So we have been planning, and thinking for months. With all the struggles we were going through the thought of this trip is the only thing that kept our spirits up most days. Now it's two days away and we are in a state of disbelief.
  4. We typically always use the truck pumps. As stated above. I have never had a bad experience either, and usually stroke up friendly conversation with the friendly truckers while fueling. We also use the plan of my wife goes inside to pay and we communicate through text or phone so it speeds up my time. I try to spend as little time at the pump as possible. We occasionally use the normal pumps, and that is a problem 90% of the time. We have used those in both a tt and a mtorhome. It seems every time someone will pull around to the pump in front of you and block you in, then go inside and get d
  5. We did. Luckily Halloween is near. So his Bon voyage party was two nights ago. Mom and myself went and got him a costume as well as ourselves. We can't wait. Our biggest obstacle is packing all this stuff. It's a seven day cruise. So a formal and semi formal night. We have decided to do a formal both nights to get really good pictures, with us being in the hospital so much most of our pictures of the last couple years have been our son in a hospital room or with ivs or other stuff. So we want a great couple of pictures for Christmas, finally a positive Christmas picture. Then it's Halloween so
  6. My sons initial wish was to have the Walt Disney suite, but that was not an option. He loved the fact it had a refrigerator with unlimited Mickey bars, so he will love that he can get them for free. About the movies. Do they have the channel with all he old Disney cartoons. That was my sons favorite part of the fort was watching and waiting for steamboat willie. He already asked if they had that on the cruise. He will also need to give his back and legs a rest and has to sit in braces for an hour every day, so that is a good thing. He already went and picked out a pirate costume for the pir
  7. Ok. As many have followed and given advice on our sons medical journey up and down the eastern seaboard he finally has some good coming his way. He was awarded make a wish. His make a wish was a Disney cruise to Saint Thomas. We have tried a few times to take a Disney cruise with him, but couldn't due to how he was feeling. So now we are going. Tonight we had his Make a wish Bon voyage party and we leave Saturday morning. We are going to be on the Disney fantasy and it is the Halloween cruise. Any tips on what to do or what to see. We did a Disney cruise before he born over 11 years ago. I thi
  8. We went there a couple times, actually bought at shirt from there. That's a big house. Do you guys have any access to the clock tower or is that all separate. I found the shower truck interesting. Lol. We will definitely be back up early January probably be there for New Years. I will let you know when it gets closer
  9. Stayed there last year. It wasn't bad at all. We got in around 9, and left the next morning around 9. Thing was there was a dirt bike track or something. Right behind the bathrooms. So come Saturday morning we were woke up by the sound of dirt bikes or something. We were surprised at how early they started
  10. Thanks brutha. We will be back up in December. This time we stayed for most of the 6 months in otterbein and the last two weeks in federal hill by cross street. It would've been nice to have some coffee with some brothers.
  11. Absolutely we will try and swing by. Last year we were going to swing by, but he was in a wheelchair and he hates meeting people in his chair
  12. Hopefully we make our year goal for him. It was to trick or treat not in a wheelchair at fort wilderness. It will be the first year in a long time he will be able to do that
  13. http://www.abc2news.com/news/region/baltimore-city/florida-boy-with-rare-condition-gets-help-at-hopkins http://www.wptv.com/news/region-c-palm-beach-county/west-palm-beach/acreage-10-year-olds-medical-mystery-solved-hopes-to-help-others For those of you that have been follow Along here are two stories done about our son. If you click on the picture in both articles it is actually the video of the news cast. For some reason a lot of people have thought it was only an article. He has been broadcast over 26 times in different cities and national news like newsie. He was actually science dailys m
  14. We were able to return home to Florida till December. Hopefully he stays pretty good until then. Good news. He was granted make a wish and he wished for the Walt sweet on a cruise to at Thomas. They couldn't grant the Walt suite, which we totally understand, but we are going in the fantasy at the end of September. Our next Disney trip planned is the fort for Halloween. Halloween can't come soon enough. We might do an overnight trip to night of joy also, but who knows. We need our Disney fix. Thank you to everyone for the advice
  15. No. We rented a house. Hopefully we will be back at the fort soon.mwe have been here since February 2nd. We are hoping to return to Florida the beginning of June. Thank you for the prayers
  16. So it would be our luck. Our son regressed and we had to return to baltimore. We have been here here months. Now the riots break out. Good luck to all of us who are in Baltimore. We are two blocks from Camden yards
  17. Hello all. Just wondering what most people do for thanksgiving dinner. It has got to be tough to cook a thanksgiving dinner in a camper. Also, I know trails end does a thanksgiving dinner, but we couldn't get a reservation. So I was wondering if they do take out turkey meals for thanksgiving
  18. Thanks for the recommendation. We still might use them. We have to return to Baltimore every six months for now, and the foreseeable future. So we might just actually camp there for some of these
  19. Thank you. He still has medical issues, but were hoping one big hurdle is over. Really hoping we can get rid of the wheelchair. When we were leaving Baltimore the lead surgeon on the team said you might be able to throw that wheelchair away in a couple months. Our son looked at him and said no I want to give it to a kid that can't afford one. So that's our goal in January if the doctor signs off on everything. Give it to a kid in my zone.
  20. Trying to get Halloween, but it doesn't seem like it's going to happen. Haven't actually camped for fun since last Halloween.
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